Sure you can post my message at the boards, actually if it's in
english I'd like to register there and talk to people with MG, see
what they've gone and are going through.. I know some French but I'm
not too comfortable writing to be honest.
I don't know how much my mum told you about me but I'll give you a
short story of my MG too. :) I was 13 and I couldn't swallow or speak
properly anymore... I was almost going to have a surgery which I,
thank God, didn't, I was wrongly diagnosed and probably would never be
able to talk again if I had that surgery. Then I found the doctor I
have now after talking to 9 other doctors, when I first used mestinon
I thought it was heaven! I had IVIG, then cortisone. Imagine, 14 year
old, first year of high school and I gain 10kilos! (I'm happy to say
however I've lost since the beginning of this summer 6kilos! success!)
I'll be honest, sometimes I forgot about MG and just hated over
cortisone. Then last year I finally stopped with cortisone but it
started again... So IVIG & cortisone all over again for me. I'm
still using cortisone but I don't feel the side effects anymore. Oh
and I had thymecthomy too, forgot to mention.
And I'll be 16 on January. I have to say MG changed me a lot, I'm
grateful for it to be honest. It gave me a new look on life...
Bengisu aura 16 ans en janvier, ele a été diagnostiquée à 13 ans.