Forum in English language.

Oui je crois que nous pourrons
avoir quelques messages en anglais.
Ce qui m'importe à moi,c'est assurer la meilleure détection

et le meilleur suvi de cette maladie.

Citation :

Bonne chance à ce nouveau Forum animé par Camille et My Ahmed.

Henri

Bon alors moi et toi , on va être des keepers silencieux, il faudra que j'embauche un Polémic anglophone:))

Don't worry , Be happy Polemic!
Maidoc "had a dream"!
You know, "all myasthenics of the world unite at the table of brotherhood" !
Mais avant qu'on rende intelligible notre "Babel Tower", il y aura heureusement encore de la place (room) pour notre (our) préféré
( favourite) ami(friend) .
I just hope this Forum be will be user-friendly (convivial) and give easy access to all our English-speaking friends .

Camilla

Post scriptum: je ne veux pas jouer les profs , mais les logiciels de traductions ne sont pas encore au point. Donc les en-têtes des nouveaux FORA pêchent un peu en syntaxe et clarté!
Et, étant donné que nous sommes 3 pelés et 4 tondus à échanger quelques messages , je pense que nous avons largement le temps de peaufiner nos "Forums Multilingues ."

Et comme j'ai une petite résurgence de myasthénie oculaire ( en clair je vois double sinon triple) , je vais me faire un peu rare .

Chère Camille:j'espère que ta "petite résurgence de myasthénie oculaire" n'est pas trop grave et qu'elle va disparaitre très vite.A très bientôt donc.Pierre.

Merci de ta sollicitude Pierre, et pour faire écho au message de Danielle et celui que tu as adressé à notre cher "physician" , pour lui demander de comprendre que nous ne sommes pas toujours au "top" , je ne vais très bien .
Comme toi , je n'aime pas cette période de l'année: des jours trop courts, une "fièvre acheteuse" qui noie toute spiritualité et même l'émerveillement de l'enfance sous des éclairages urbains un peu mités et de faux Pères Noël dépêchés par l'ANPE!
Serait-ce pur dépit de ma part? La simple frustration de ne pouvoir accéder au chapon rôti que sous sa forme moulinée et sans sel? L'inanité de me vêtir de strass et de paillettes pour le Réveillon avec mes yeux louchons et mon visage de Triste Pierrot? La nostalgie d'une époque révolue où ,petite enfant,je croyais encore qu'il suffisait d'écrire une lettre au Père Noël , pour avoir toutes les poupées de ses rêves ? La nostalgie de l'époque où jeune maman , je lisais la même confiance et le même pur bonheur dans les yeux de mon petit garçon qui jouait avec ses dinosaures ou son vaisseau "Star Wars"? Est-ce la peur de continuer à servir "d'acolyte" au déclin de ma maman ? Car après tout , quel meilleur et plus fidèle bâton de vieillesse aura-t-elle, même s'il est un peu branlant et sujet "à des sautes d'humeur" , que sa fille , qui est seule, habite tout près , et qu'elle a toujours élue, non pour sa tendresse , mais pour sa résilience? Tous les autres enfants vivent en couple , sauf le dernier, le plus abimé , qui l'aime le plus.
Oui chaque Noêl réactive cette lutte incessante entre ma mère et moi. Dans la culpabilité et la souffrance , car cette dame est magnifique, belle et adorable, aimante à sa façon .Mais c'est une Grande Dame, pas ma maman.
J'ai interrompu ma psychothérapie , pour des raisons financières surtout.
Sans heures supplémentaires , j'arrive à peu près à faire mon boulot, encore assez bien , je l'espère, mais pas avec le panache et l'intelligence de "l'avant -myasthénie". Mais si je veux finir de payer mon petit deux-pièces , il faut que je continue à travailler même au-delà de la "Retraite".
Lundi j'ai rencontré brièvement mon frère , plein de projets créatifs , qui a pu avoir une famille à lui après de nombreuses luttes . Son problème à l'heure actuelle est de trouver un cheval qui lui convienne . Quand il a vu mes yeux louchons , il m'a dit "pourquoi tu ne mets pas des lunettes?"

Is it possible everyone sticks to english in the english boards? Because it takes me a long time to comprehend the french texts. All the other boards are in french anyways. :oops:

Hello Bengistu !And welcome ! Don't worry , you can post any message , most of us will understand and I will translate for you.
We've found a photo for you .
Do you think you could send yours ?

camille a écrit:

Hello Bengistu !And welcome ! Don't worry , you can post any message , most of us will understand and I will translate for you.
We've found a photo for you .
Do you think you could send yours ?

A photo of me? Sure... Not the one I like the most but this is the only one on my laptop. This was before I lost any cortisone weight. :)

(I'm familiar to message boards by the way, so you don't have to worry anything about that Camille. Thought I'd say.)

You look lovely and not fat at all!
Not very different from the picture Henri had chosen for you !
Big hugs from all of us !

camille a écrit:

You look lovely and not fat at all!
Not very different from the picture Henri had chosen for you !
Big hugs from all of us !

Yay thanks. :D

What about the lyrics or poem? It sounds familiar somehow?

camille a écrit:

What about the lyrics or poem? It sounds familiar somehow?

The one in my signature? That's a verse from Placebo's 'English Summer Rain' (single version though). *big Placebo fan* And the avatar is Nastassja Kinski, actress, if you know her. :)

Yes I do know Nastassia Kinski and the many films she featured in .Great ones and bad ones .
As far as music is concerned , I tend to shed tears when an Italian Tenor dies on stage !

camille a écrit:

Yes I do know Nastassia Kinski and the many films she featured in .Great ones and bad ones .
As far as music is concerned , I tend to shed tears when an Italian Tenor dies on stage !

Well..... I usually prefer rock or alternative music-wise. I mainly like Nastassja because of 'Tess'.

bonjour jolie Bengisu je te souhaite la bienvenue et une très bonne année 2006
Annie

louis lours a écrit:

bonjour jolie Bengisu je te souhaite la bienvenue et une très bonne année 2006
Annie

Bonjour Annie et merci, je te souhaite la meme. :)

tu peux dire à henri de faire attention à l'orthographe, même quand ce n'est pas du français? Elle s'appelle "BENGISU"

seulement quand il s'agit d'une gentille jeune fille turque:))

Polémic a écrit:

tu peux dire à henri de faire attention à l'orthographe, même quand ce n'est pas du français? Elle s'appelle "BENGISU"

Merci pour correcter. :D Je compris que les etrangers ont difficulte avec pronounciaton de mon nom, c'est d'accord.

Et je suis contente avec mon avatar, je peux change aprés peut-etre. :)

Thank you so much for answering in French!
(As a teacher, I think you're making excellent progress , and I believe you'll soon be trilingual !)
I do rely on you , though, to help me with this Forum.
I would very much like you to tell us about your own experience with dealing with the disease and connecting with other patients.

Are there any other MG sufferers in Turkey that you know of?
What about the availibily of treatments in your country?And their costs?

My impression is that the illness for you is just a setback which has made you stronger and more mature and will never cripple you .

This is my own faith and creed .

camille a écrit:

Thank you so much for answering in French!
(As a teacher, I think you're making excellent progress , and I believe you'll soon be trilingual !)
I do rely on you , though, to help me with this Forum.
I would very much like you to tell us about your own experience with dealing with the disease and connecting with other patients.

Are there any other MG sufferers in Turkey that you know of?
What about the availibily of treatments in your country?And their costs?

My impression is that the illness for you is just a setback which has made you stronger and more mature and will never cripple you .

This is my own faith and creed .

Thanks I'm really trying to improve my French! :D

I'll try to write something more descriptive about my experiences when I have time on holidays, I think I will visit my doctor too then, I would ask him if he has patients who'd like to visit here, but I'm afraid language might be a problem. That's why I want to work on that Turkish site I told you about, I have yet to start though. I do know patients who have been badly affected by the disease, I seem to be the odd one out turning it into something positive. :P

"I seem to be the odd one out turning it into something positive"
We shall all follow in your footsteps then!

camille a écrit:

"I seem to be the odd one out turning it into something positive"
We shall all follow in your footsteps then!

I'm sure you will! :D

Bengisu, I do love your avatar! YET I prefer your photo, because you're so young and beautiful in spite of the illness and the side effects of the treatment, which have affected so many of us .
I would like your photo to be the symbol of our common fight .
We're all beautiful people .

I uploaded new photos, I shall make an avatar from those.

And OMG, I lost another cortisone weight! 3 more to go!

I love your new avatar . And Bravo for the weight loss!
Are you on a diet ?
Good night !
Sleep tight !

camille a écrit:

I love your new avatar . And Bravo for the weight loss!
Are you on a diet ?
Good night !
Sleep tight !

Nope, I just watch what I eat and take walks regularly, I also play softball... It's not about starving, if I do what I normally should do to be healthy/fit/vs, I'll be fine and will go back to my normal weight. That's what I noticed. :)

Bengisu , please thank your Mum for replying to my personal message .
You have opened with her help new horizons for our common fight .
This is a personal message : I don't like what the papers say about the avian flu threatening the "borders of Europe ".
If there is any risk of a pandemic , it should be addressed by the "International Community" at large .
There are no borders when children are dying .
Blaming the poor hygiene on some remote farms , where people can only keep warm by sleeping with their animals , poultry included , for the threat to the common health of more affluent European countries is missing the point , or totally obscene .

Take care , though!
And keep smiling : our generation has been through many fights and we are fit enough to protect our daughters and sons , and their children to come, from greed and indifference .

( Yet we rely on you to pay for our retirement pensions , LOL!)

camille a écrit:

Bengisu , please thank your Mum for replying to my personal message .
You have opened with her help new horizons for our common fight .
This is a personal message : I don't like what the papers say about the avian flu threatening the "borders of Europe ".
If there is any risk of a pandemic , it should be addressed by the "International Community" at large .
There are no borders when children are dying .
Blaming the poor hygiene on some remote farms , where people can only keep warm by sleeping with their animals , poultry included , for the threat to the common health of more affluent European countries is missing the point , or totally obscene .

Take care , though!
And keep smiling : our generation has been through many fights and we are fit enough to protect our daughters and sons , and their children to come, from greed and indifference .

( Yet we rely on you to pay for our retirement pensions , LOL!)

LoL and okay I'll tell her. :)

And it's not all about poor hygiene. Some kids were infected because they touched a glove that was used to handle the infected birds. :silent: